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Table of Contents
LETTER TO EDITOR
Year : 2020  |  Volume : 3  |  Issue : 4  |  Page : 853-854

Authors' reply to Ganguly et al.


1 Centre for Medical Psychology and Evidence-based Decisionmaking, School of Psychology, Faculty of Science, The University of Sydney, Sydney, NSW, Australia
2 Fenivi Research Solutions, Cancer Institute (WIA), Chennai, Tamil Nadu, India
3 Department of Pediatric Oncology/Medical Oncology, Cancer Institute (WIA), Chennai, Tamil Nadu, India

Date of Submission17-Oct-2020
Date of Decision02-Dec-2020
Date of Acceptance04-Dec-2020
Date of Web Publication25-Dec-2020

Correspondence Address:
Chindhu Shunmugasundaram
C39Z, North, Level 6, Chris O'Brien Lifehouse, Missenden Road, Camperdown, Sydney, NSW 2050
Australia
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Source of Support: None, Conflict of Interest: None


DOI: 10.4103/crst.crst_323_20

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How to cite this article:
Shunmugasundaram C, Elangovan V, Radhakrishnan V. Authors' reply to Ganguly et al. Cancer Res Stat Treat 2020;3:853-4

How to cite this URL:
Shunmugasundaram C, Elangovan V, Radhakrishnan V. Authors' reply to Ganguly et al. Cancer Res Stat Treat [serial online] 2020 [cited 2021 Jan 25];3:853-4. Available from: https://www.crstonline.com/text.asp?2020/3/4/853/304992



We thank Ganguly et al.[1] for their constructive comments and suggestions on our manuscript titled, ”Construction and validation of a quality of life tool for pediatric patients of Indian origin with cancer: A single-center prospective study,”[2] and the accompanying editorial.[3]

The suggestions offered by the authors have been very helpful to us for revisiting some areas of our work. It was encouraging to read that, overall, the authors felt that our study “addressed a significant need,” and that, “the scale is easy, can be self-administered, and is less time consuming, making it appropriate for use in the Indian context.”

We agree with the authors and note that cancer care facilities in India have an enormously high caseload, stretching the already-limited health-care resources.[4],[5],[6] This is another reason for patients and their caregivers (primarily parents of children diagnosed with cancer), to be aware of the various psychological concerns and to take steps to attempt to minimize them. It is internationally accepted that assessing how patients are feeling[7] and functioning is essential for providing patient-centered care, and, with the current statistics of those who can read/write in English in India, the need for patient-reported outcome measures (PROMs) adapted to other languages and diverse cultures has increased. In translating PROMs into other languages, the consideration of cultural issues is essential. A simple literal language translation is unlikely to achieve equivalence due to linguistic and cultural differences.[8],[9],[10] The current work is the first step in this direction.

Hence, our future work will focus on (1) rigorous translation and linguistic validation of the quality-of-life measure, (2) adaptation of the measure to younger children (<10 years of age) with pictorial representation of the items, (3) development of proxy forms to be filled by parents/caregivers and clinicians, and (4) including Indian patients in future PROM assessment and intervention effectiveness studies between countries.

One of the limitations of our study was its inability to be generalized to all children diagnosed with cancer across the cancer trajectory (e.g., cancer types and treatment stage).

Future work will also focus on evaluating psychometric properties such as stability (e.g., test re-test), clinical validity (e.g., known groups), and responsiveness of the developed quality-of-life measure for Indian children diagnosed with cancer.

Financial support and sponsorship

Nil.

Conflicts of interest

There are no conflicts of interest.



 
  References Top

1.
Ganguly S, Bakhshi S. Measuring quality of life in Indian children with cancer: Addressing? an unmet need. Cancer Res Stat Treat 2020;?3:851-2.  Back to cited text no. 1
    
2.
Shunmugasundaram C, Elangovan V, Radhakrishnan V. Construction and validation of a quality of life tool for pediatric patients of Indian origin with cancer: A single-center prospective study. Cancer Res Stat Treat 2020;3:445-54.  Back to cited text no. 2
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3.
Krishnamurthy R, Sarin R. Quality of life of Indian children with cancer: Measuring what matters. Cancer Res Stat Treat 2020;3:566-8.  Back to cited text no. 3
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4.
Chaturvedi SK, Strohschein FJ, Saraf G, Loiselle CG. Communication in cancer care: Psycho-social, interactional, and cultural issues. A general overview and the example of India. Front Psychol 2014;5:1332.  Back to cited text no. 4
    
5.
Chawak S, Chittem M, Butow P, Huilgol N. Indian cancer patients' needs, perceptions of, and expectations from their support network: A qualitative study. J Cancer Educ 2020;35:462-9.   Back to cited text no. 5
    
6.
Philip CC, Mathew A, John M J. Cancer care: Challenges in the developing world. Cancer Res Stat Treat 2018;1:58-62.  Back to cited text no. 6
  [Full text]  
7.
Cleeland CS, Sloan JA, Group AO. Assessing the symptoms of cancer using patient-reported outcomes (ASCPRO): Searching for standards. J Pain Symptom Manag 2010;39:1077-85.  Back to cited text no. 7
    
8.
Le Gal M, Mainguy Y, Le Lay K, Nadjar A, Allain D, Galissié M. Linguistic validation of six patient-reported outcomes instruments into 12 languages for patients with fibromyalgia. Joint Bone Spine 2010;77:165-70.  Back to cited text no. 8
    
9.
Gunn GB, Koukourakis MI, Mendoza TR, Cleeland CS, Rosenthal DI. Linguistic validation of the Greek MD Anderson symptom inventory–head and neck module. Forum Clin Oncol 2012;3:29-31.  Back to cited text no. 9
    
10.
Guillemin F, Bombardier C, Beaton D. Cross-cultural adaptation of health-related quality of life measures: Literature review and proposed guidelines. J Clin Epidemiol 1993;46:1417-32.  Back to cited text no. 10
    




 

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